Mom, what can I do to go home, I am so painful, so uncomfortable!
The boy "broke down" for 11 years, during which time he suffered great pain all the time.
Parents grieve every time they see their child's crippled body.
Zhang Junshuo, born in a harmonious and happy family in 2011, is the third child in the family, since the moment of birth, he has been pampered by thousands of people, and his parents love him very much, and the time has passed for more than half a year.
One night he suddenly began to cry loudly, and the parents who were woken up didn't know what was going on when they saw this scene, and they had been very well-behaved in the middle of the night, and then the mother found that it was the child who pulled it, so she smiled comfortably, picked up new diapers and changed them for him.
But after a while, the child began to pull again, and the mother thought that she had fed him a little too much at night, so she didn't think much about it.
However, in the following days, the child has been repeatedly diarrhea and diarrhea, and also developed leakage.
This made the parents feel that the big thing was not good, so they quickly took the child to Nanyang City Hospital, and after the doctor's examination, the leakage was diagnosed and the leakage surgery was performed.
The parents, who thought that everything would be fine after the operation, brought the child home, but the child began to have repeated infections accompanied by fever, sometimes even a high fever of 39 degrees.
Such a young child, for this temperature is almost no different from burning the brain, and then the two brought the child to the hospital again, but the cause could not be found, and since then the child has been repeatedly infected with fever and frequently went to the hospital.
If you can't find the cause, when you are more than one year old, the body begins to grow that small bag, it won't take long for the bag to break and not heal, no matter what method the parents use, it can't stop the reproduction of that small bag.
In Nanyang, the hospital has not effectively helped Zhang Junshuo for this symptom, and in desperation, they had to change positions
Since Nanyang is not cured, go to Zhengzhou, where the medical equipment is relatively advanced, and after a comprehensive examination, I learned that the child was suffering from "gangrenous pyoderma".
So what is pyoderma gangrenosum?
This is an inflammatory skin disease characterized by skin ulcers.
Clinically very rare, and the specific cause is unknown, the disease is not contagious and not inherited.
It is usually caused by immune dysfunction, bacterial infection, etc.
And the little boy Zhang Junshuo is like this, his whole body is festering, and there are still many scars left on his body at that time. The hospital operated on the boy accordingly.
I spent more than a year unharmed like this, and the two of them were very happy.
But it didn't seem as simple as they thought, and after a year and two months, the boy's condition deteriorated again, and his whole body began to grow and break again, and the places on his face where the knees had not grown before began to show signs of rupture.
It will often be accompanied by high fever and inflammation, which is more serious than before, and a lot of pus will flow out of the broken place, so that parents cannot give it care at all.
The mother was about to be distressed, and she looked at her young son who was tortured because of the pain, and burst into tears.
The child is still young, she can't express her pain very clearly, the mother's heart hurts like a needle, she really can't imagine what kind of pain her child has experienced, if the pain can be transferred, how much she wants to bear all this for the child.
In this way, the boy Zhang Junshuo received treatment again, and slowly seemed to improve.
Just when the hanging hearts of Mom and Dad were about to be put down, God joked with them again.
The rupture was not well so, and he suffered from pneumonia bronchitis again.
It is also a repeated episode of infection.
In just a few years, he suffered from different diseases.
In 2015, the condition bronchitis was detected
In 2016, "right-sided lobar pneumonia" was detected
In 2018, "left-sided lobar pneumonia" was detected
I have been living with various conditions since I was a child, and I have an endless fever of infection every year.
For the sake of their children, they left their jobs and started running around looking for medical treatment.
Wuhan, Zhengzhou and other places have traveled all over, and they also know that it is not a way to go on like this.
Their actions are seen by relatives and friends, and they are also very unhappy, and the child has been sick since not long after birth.
In order to help the couple get through the difficulties, they will each do their own little bit to undertake some matters of their hometown parents, so that they can treat their children with peace of mind.
As the saying goes: the disease is in the child's body, and the pain is in the parents' heart.
What they want to know most now is where the main cause of these diseases comes from, but no matter which hospital they come to, they can never find out the real "culprit".
From childhood to adulthood, the child had countless bone piercings, and the hospital could not detect any abnormalities.
Not long after the diagnosis of left-sided lobar pneumonia in 2018, the disease came to Zhang Junshuo again, and he was told by the hospital that he was diagnosed with "primary immunodeficiency disease" (also known as "primary immunodeficiency disease chronic granuloma").
And this disease is not the same as those that came before, and this disease will gradually take his life.
The professor told his mother.
"If you don't want your child's life to stay here forever, you must have a bone marrow transplant as soon as possible, otherwise your life is at stake, and you may not live to be 7 years old."
This sentence completely broke the woman, she could not have imagined that she had worked hard to seek medical treatment for so many years, but finally ushered in such a result.
She returned to the rental house with tears on her face, and her husband, who was preparing the meal, had a bad premonition in his heart when he saw this scene, and trembled and asked his wife what happened.
After listening to his wife's words, he also squatted on the ground with his butt, and this news was like a thunderbolt on a sunny day, making him a big man tremble and never stand up.
What does his desperate child want them to spare their family?
Because they have been taking their children to treat diseases outside for many years, their previous family has spent almost the same, and now the amount needed for bone marrow transplantation is an astronomical amount for them, and they can't get that much.
They also have two children in school and need money, and they have been supported by two parents in recent years.
The couple felt like their heads were going to explode.
But they don't want to give up their child's treatment, but there is nothing they can do.
A phone call was made back to inform the old father and mother who were far away from home.
On the other end of the phone is endless crying.
When the old man heard about this, he also had mixed feelings, and they also wanted their little grandson to survive.
So he tentatively asked his son to see if he could borrow someone first, and if the amount was not enough, they would scrape together money to treat his grandson even if they smashed pots and sold iron.
Men also understand what their parents mean.
They also don't want to give up treatment, they really give a lot to their child's treatment.
After hanging up the phone, the borrowing mode is turned on.
Originally, the couple was worried that the money would not be together, but after hearing the details, relatives and friends all extended a helping hand, and soon they raised the money.
Then there is another problem, that is, bone marrow donors, multiple matches do not have a very suitable candidate.
After the doctor's questioning, he learned that they still had two children, and the doctor suggested that the two children should come and try it.
The two who learned the situation also rushed to the hospital where their brother was as quickly as possible.
In matching with the younger brother, the sister's all items are quite consistent with the younger brother.
The couple was also a little sad, looking at their sister who was happy to hear the news, they didn't say much.
Soon the operation was successfully completed, and the couple's hanging hearts also fell at this time.
In order to celebrate, the couple also bought a lot of delicious food.
One is to make up for my daughter.
The second is to celebrate that their youngest son will finally see again and no longer suffer from illness.
After all these years, they have finally come to see the light.
But reality is joking with them again.
Within a few days, the boy Zhang Junshuo had rejection, and the rejection was particularly serious.
At one point, it led to endless molting on his body.
The black and white on his face was pitiful, almost in a state of disfigurement.
The long-term treatment also caused his limbs to be slightly deformed, but his small body was tortured and could not walk independently, and he could only rely on his parents to live every day.
But he is optimistic, believing that after darkness comes light.
And the woman also because of the child's mother, she felt that even if she was hard and tired, all this effort was worth it.
After this incident, they are really already poor.
Their medical records over the years covered the entire compound.
In order to be able to get better treatment for her children in the next life, women have no choice but to pin their hopes on media friends.
After the relevant media learned of the situation, they also rushed to conduct relevant interviews as soon as possible.
But media friends entered the house and saw the tortured boy in front of him who was already covered in scales, and they all expressed disbelief, which was really pitiful.
The child did not feel inferior because of his appearance and did not want to see people, and he confidently greeted his brothers and sisters who came to his house.
This shows that his parents have always encouraged the boy to be strong and optimistic.
In the process of learning about this incident and writing, the editor was also teary-eyed, and almost did not control his emotions.
This also makes the editor sigh at the greatness of flesh and blood affection, and it is precisely because of the perseverance of everyone in the family that the boy Xiaoshuoshuo's life has been continued to this day.
I hope that one day boys can truly get rid of the disease and be able to run in their own fanghua with open hands like other children.
What do you feel about this, welcome to speak in the comment area to discuss!
Note: The boy's treatment process is true, and the overall story has been added, which does not affect the direction of things.
I hope you can pay more attention to this news, the child is still in continuous treatment!