"Leilei, you want whatever your mother wants, please don't do this again." The daughter suddenly fell ill again, her hands kept slapping the wall, and her small hands were already red but still did not stop. Mother Xu Chan patiently advised her daughter and tried to control her daughter's body, but Lei Lei, who suffered from rare diseases, often hurt herself. "She has no concept of danger, she still runs over when the car comes, sleeps very poorly, sometimes tortures herself to the point of collapse, and she will slap the wall with her hands and hurt herself." Speaking of her daughter's illness, Xu Chan burst into tears. The picture shows Xu Chan waiting for treatment with her daughter.
Lei Lei's illness worsened day by day after her illness, but her husband chose to give up at this time. What made her even more desperate was that her only father who supported him died of a serious illness. She can only take her mother, who is sick and unable to take care of herself, and her daughter who is seriously ill, and what was once a good family is now broken up. In a short period of one year, Xu Chan tasted the pain of life. And the cost of her daughter's follow-up treatment is like a mountain pressing on her heart, and she doesn't know how long she can last. The picture shows Lei Lei lying in the rehabilitation room.
In 2017, Xu Chan's daughter Lei Lei was more than 3 years old and could not speak normally, Xu Chan took her to Chengdu Huaxi Hospital for examination, and after the examination, Lei Lei was told that she had stunted growth and could only do rehabilitation training for treatment. In order to insist on treating her daughter, Xu Chan sold the family house and all the valuable things.
Xu Chan constantly inquired where there was a better treatment, as long as she knew where there was a better treatment, Xu Chan would rush there with her daughter at the first time. However, even so, after a series of projects such as speech, acupuncture, and sensory system treatment for 1 year, Lei Lei has not improved, and other symptoms such as emotional impermanence have also appeared. Experienced doctors remind Xu Chan, "The child's symptoms may not be a problem of developmental delay, go to the hospital to check it." Hearing the doctor say this, Xu Chan's heart hung up at once, and then she took her daughter to the hospital for genetic testing. The picture shows Xu Chan feeding her daughter water.
"Smiths Magili syndrome", looking at the unheard of name of the disease on the diagnosis book, Xu Chan was suddenly confused. "This is an extremely rare disease, there are only more than 130 cases in the world, children with this disease will have sleep disorders, mental retardation, uncontrollable emotions, high pain points symptoms, parents need to take care of it step by step, if you do not grasp the treatment of this life will be like this." 」 Every word the doctor said was like a knife stuck into Xu Chan's body, and she couldn't accept such a fact at all. The picture shows Leilei.
"Why should I have such a rare disease to let my daughter suffer, she is still so young, a long life, this makes her what to do in the future?" 」 Xu Chan slumped on the ground in despair, hugging her daughter tightly and crying bitterly. Affected by her mother's emotions, Lei Lei also shouted, looking at her daughter's appearance, Xu Chan was even more distressed, she even had the thought of death. But Xu Chan knew that only if she lived, her daughter could have hope. The picture shows Xu Chan talking about this family silently weeping.
Xu Chan traveled to countless hospitals for her daughter, and every time she went to a hospital, she asked: "What kind of treatment can make the child better." She added dozens of patient groups, and every time she heard about the treatment of Leilei's disease, she worked tirelessly and immediately took her daughter to seek medical treatment. In those days, Leilei used 3 bad back bags on her mother's back.
Lei Lei couldn't even chew at first, Xu Chan could only get up early every day, break the meal with a wall breaker after making the meal, and then feed it to her daughter's mouth little by little with a spoon. What makes her uncomfortable compared to the hard work of cooking is that Lei Lei sometimes loses her temper and overturns the bowl. Every time she looked at the food on the ground and her daughter who didn't understand anything, Xu Chan's heart had an unspeakable sourness, but she never complained, just cooked and fed her daughter over and over again until Lei Lei was at ease. The picture shows Xu Chan and her daughter Lei Lei.
At the same time, Leilei's sleep is getting worse and worse, often day and night or suddenly waking up at night. Every time there is a little movement, Xu Chan will get up to accompany her daughter, often when the daughter wakes up, she will wake up at what time, and her daughter will not sleep for several hours. In the long run, Xu Chan was physically and mentally exhausted, and in her opinion, as long as her daughter could hope, it was all worth it. However, the bad luck is focused on finding the bitter people, but at this time, the family has changed one after another. The picture shows Xu Chan feeding her daughter to dinner.
Lei Lei's grandfather suffered from lung cancer in 2019 and was in critical condition, Xu Chan borrowed a large amount of money to treat her father, so Lei Lei's treatment also had to be temporarily stopped at the end of 2019. After learning that she had spent her granddaughter's life-saving money, Grandpa Lei Lei felt guilty and slowly stopped cooperating with the treatment. Under the double blow of deteriorating condition and psychological pressure, in 2020, my grandfather unfortunately passed away. The picture shows Xu Chan teaching her daughter to recognize the card.
What made her mother Xu Chan even more devastated was that Grandma Lei Lei had serious sequelae due to an operation, and she was weak and sick because of the death of her wife, her condition gradually worsened, and now she is paralyzed in bed. In desperation, Xu Chan could only take her mother to her side to take care of her.
In this case, Leilei's treatment can only be postponed again and again. What Xu Chan did not expect was that in just a few months, Lei Lei's condition developed rapidly, her sleep became worse and worse, she often shouted and lost her temper, and slowly showed signs of self-harm. The picture shows Xu Chan accompanying her daughter to do rehabilitation training.
Xu Chan knew that her daughter's illness could not be interrupted now, and when she was preparing to continue to take her daughter to seek medical treatment, she did not expect that the family had changed again.
"This child can't be cured, and the family really can't come up with money, so give up." When Xu Chan once again mentioned her daughter's treatment to her husband, she unexpectedly refused. Lei Lei has spent hundreds of thousands of yuan after her illness, and now the family has long been in debt, which has overwhelmed her husband' breathlessness, and he chose to give up his daughter in desperation, and since then he has no longer asked about the child and no longer paid her. At that moment, Xu Chan felt isolated and helpless, and everything in front of her seemed to have no hope. The picture shows Xu Chan helping her daughter do rehabilitation training.
"What can I do about this, does my daughter really want to go on like this for the rest of her life?" Xu Chan collapsed helplessly. "The most reassuring thing before your dad left is this child, don't give up, your mother will always support you." When Xu Chan collapsed and despaired, Lei Lei's grandmother's words made her regain her confidence, and she decided that she could not give up on her daughter no matter what.
However, it was difficult to move without money, until October 2021, When Xu Chan heard that there was a hospital in Qujing that could do rehabilitation treatment and that there was support in the policy, Xu Chan immediately rushed there with her daughter and began to continue treatment. For Xu Chan, this treatment became more difficult than ever, and she needed to take care of Lei Lei's grandmother and young son at the same time. The picture shows Xu Chan washing her daughter's hands.
Every day at less than 6 o'clock, Xu Chan has to get up early to prepare the family's meals, and after taking care of her daughter and her 5-year-old son, she hastily sends her young son to kindergarten, and then rushes to the hospital with her daughter to start the day's rehabilitation treatment. At the end of the treatment every day, it was already evening, and Xu Chan still had to wipe the body of Grandma Leilei, and she could rest after taking care of the two children to wash up. After every day of busyness, basically after ten o'clock in the night, all day tired, Xu Chan was tired, but she was still insisting.
What makes Xu Chan happy is that After continuing treatment, Lei Lei has improved significantly, has some perception of pain, and can communicate simply. Although it was some small changes, Xu Chan still saw hope, and her determination to take her daughter to the treatment became more determined. But the treatment fee is like a mountain in front of you, which is difficult to climb. The picture shows Xu Chan's mother and daughter.
The family is now in debt, in order to save money for her daughter's treatment, Xu Chan can save money. Every night, she would spend a low price to buy some stale vegetables at the supermarket for cooking, and sometimes when there was no low-priced dish, she would pick up some vegetable leaves that others did not want and take them home. For them, don't say meat, even a bag of squeezed vegetables is a luxury. However, despite this, Leilei's treatment is still difficult. The picture shows Xu Chan worried about her daughter.
In order to continue to treat her daughter, Xu Chan got a part-time job through a friend, but the 500 yuan earned every month was a drop in the bucket in the face of high treatment fees.
Now, Xu Chan can no longer go on, "I don't pray for my daughter to be cured, even if her life can take care of herself in the future, I will be relieved, but now she doesn't even understand the danger, others give a candy she will follow, which makes me how can I give up like this." Xu Chan shed tears of despair. The picture shows Lei Lei. Original works, it is strictly forbidden to reprint in any form, infringement will be investigated!