700,000 yuan down to 33,000 yuan! Parents of children tearfully thank you: this is the best New Year's gift

In early December last year

The National Medical Insurance Bureau announced 74 new drugs into medical insurance

The first approved treatment in China

Imported medicine for spinal muscular dystrophy

Northinalsan sodium injection suffers from "soul bargaining"

Finally at a "floor price" of 33,000 yuan per needle

Enter the new version of the Medicare Drug Catalogue

And from the first day of the new year to implement the new drug price

In Zaozhuang, Shandong, a 4-year-old boy, Li Jiashu

Became the first person in the country to inject this drug after it was included in medical insurance

△ CCTV Finance "Economic Information Simulcast" column video

In the early morning of January 1, Li Jiashu was pushed into the PICU ward of Zaozhuang Maternal and Child Health Hospital and officially received SMA targeted drug injection. Sun Xiaoqian, director of picu of Zaozhuang Maternal and Child Health Hospital in Shandong Province, said: "After we came in just now, we were given intravenous sedation and analgesia, lumbar puncture, a successful, intrathecal injection successfully completed. ”

After learning that the injection was successful, Xiao Jiashu's mother, who had been guarding outside the ward, finally put her mind at ease. Xiao Jiashu was born in Zaozhuang, Shandong Province in 2017, and when she was 10 months old, her leg muscles atrophied and she was unable to walk. After diagnosis, he was diagnosed as a patient with "spinal muscular atrophy".

Spinal muscular atrophy, referred to as SMA, is a rare disease of hereditary neuromuscular diseases, with an incidence of about 1/6000 to 1/10,000 in newborns in China, and there are currently about 30,000 patients.

In 2019, the world's first spinal muscular atrophy treatment drug, Nocinasin sodium injection, was approved for marketing in China, but the price of nearly 700,000 yuan per injection made most of the children's families unbearable. In the case of Xiao Jia Shu, 6 injections are required in the first year, and 3 injections per year thereafter.

On December 3 last year, after 8 rounds of negotiations, Nocinasin sodium injection entered the new version of the medical insurance drug catalog at a price of 33,000 yuan per injection, which made many patients see hope. Li Jiashu's mother, Li Xiuhua, said: "When we saw this news report, we all cried at that time, and we were really touched at that time. ”

After the release of the new version of the national medical insurance drug catalog, the zaozhuang medical insurance department conducted an inspection of the patients in the jurisdiction for the first time and contacted the patients' families. After determining the patient's medication needs, after repeated communication with pharmaceutical companies, it was finally ensured that the children could receive medication treatment at the first time.

At about 10:00 a.m. on January 1, Tong Tong, who suffered from spinal muscular atrophy (SMA), received a sodium injection from Wuhan Children's Hospital, becoming the first child in Hubei to receive injections after the drug was included in medical insurance. Tongtong's mother, Ms. Zheng, said with tears in her eyes: "Thanks to the good policy of the country, this is the best New Year's gift for our family." ”

Source: CCTV

Editor-in-Charge: Li Yun

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