Yang Yaxue was admitted to the hospital a few days after she was born, and her parents had no way to accompany her. As a mother, Zhao Dongqiong did her best to cure her daughter's illness. However, contrary to her wishes, when Xiao Yaxue had just turned 11 months old, the doctor told her: "We have tried our best, you should think of other ways." "
The picture shows Yang Yaxue
The daughter is the angel of the mother, and when she heard that her daughter had no hope, Zhao Dongqiong's heart was empty at once. She felt that the sky was spinning, the six gods were masterless, the sun was shining brightly in the corridor of the hospital, the whole world was so bright and beautiful, why couldn't she raise her little daughter? Zhao Dongqiong trembled and took her daughter from the doctor's arms with trembling hands, although Xiao Yaxue was so weak that she couldn't even lift her head, she who hadn't seen her mother for more than half a month actually smiled at Zhao Dongqiong. Seeing her daughter's smiling face, Zhao Dongqiong could no longer control it, and she looked down at her daughter's small face and cried bitterly.
The picture shows Zhao Dongqiong and her daughter Yaxue
Zhao Dongqiong, a native of Zaolin Town, Bazhong City, Sichuan Province, met Yang Chao, a compatriot who was 5 years older than herself, when she was working as a migrant worker. March 28, 2019 is Zhao Dongqiong's birthday, and just when Yang Chao gave her a happy birthday, she found out that she was pregnant. It was the best birthday present God had ever given her, and they were so happy.
Zhao Dongqiong reacted greatly during pregnancy, and her husband asked her to quit her job and raise a baby at home. When it was necessary to do a pregnancy test, Yang Chao took a leave of absence to accompany his wife.
The picture shows Zhao Dongqiong and her daughter
On November 1, 2019, their daughter fell to the ground, and when Zhao Dongqiong finished giving birth and opened her eyes to see her daughter's pink little face for the first time, her heart suddenly inspired the greatest motherhood. On that day, there was a snow in the Bazhong area, and Zhao Dongqiong and her husband affectionately named their daughter Xuebao. When the child was born, all the indicators were normal, and after a few days in the hospital, he was discharged and returned home.
The picture shows Snow Treasure
Unexpectedly, the next night after returning home, Xiao Xuebao kept crying. Zhao Dongqiong and her husband rushed to the local hospital for examination, showing that the child's jaundice index was high. At 12:00 a.m., Xuebao went through the hospitalization procedures, and the hospital did not let the parents accompany them, so they opened a hotel near the hospital and waited for the results. As a new mother, Zhao Dongqiong was worried about her children, couldn't sleep, and held her husband all night and cried constantly.
The next morning, the doctor called and said that the child was better, but still no visits and no escorts were allowed. The mother-in-law was worried that her daughter-in-law had just given birth to a child, and she was sick with the wind and cold in the month, so she called her son to take her home. Back at home, seeing her daughter's bottles and small clothes, thinking that her daughter left herself at such a young age, and suffered alone in the hospital, Zhao Dongqiong was so distressed that she could not put it down, insisting on going to the hospital to see the child. She said: "I just don't let her accompany, I look at her through the door, and she is not alone." "The old man was afraid of contracting wind and cold, and fell ill with confinement, so he stopped her and did not let her go to the hospital."
The picture shows Zhao Dongqiong holding Xuebao's small hand
On the third day, the hospital called to say that the child was cured and asked the family to pick it up. Zhao Dongqiong rushed to the hospital for the first time, saw her daughter, rushed forward and hugged her in her arms, so the little daughter endured loneliness and illness alone in the hospital, so pitiful, so heart-wrenching and worried, Zhao Dongqiong's tears involuntarily fell on Xuebao's swaddling.
After returning home, Zhao Dongqiong carefully cared for her daughter and carefully fed her to grow up day by day. More than 90% of her energy is spent on Xuebao, and when Xuebao is well, her heart is full of happiness and sweetness. Xuebao cried and made trouble, and she was terrified and uneasy, afraid that her daughter would be bad. When he was 3 months old, Xuebao, who was loved by his mother in his mouth, was still sick and suffered from pneumonia. After a week of treatment, the illness was cured, but the family found that Xuebao's head could not be lifted.
At this time, Yang Chao's family came to Shanghai to work. At first, everyone in the family thought that it was the reason for the girl's lack of strength. But when they were 5 months old, Xuebao still couldn't hold his head, and they realized that something was wrong. So Yang Chao and his wife took the child to Fudan Pediatric Hospital for examination and hung up the department of neurology. At first the doctor said the child was stunted, and later the examination said it might be SMA (spinal muscular dystrophy). In order to confirm the diagnosis, the child did an electromyography, and the results came out quickly, and Xuebao suffered from SMA.
This is a rare disease, hearing the results, Zhao Dongqiong could not speak for a while, and did not understand why the child had this disease. She looked down at her daughter, and Xuebao kept looking at her mother, and she felt unspeakable heartache. After returning home, Zhao Dongqiong did not dare to cry in front of her parents, and when she slept at night, she secretly cried alone with her head covered in the bed.
At present, the only specific drug available for this disease is Nocinasine sodium injection, but a shot is as high as 550,000 yuan. Zhao Dongqiong and his wife could not come up with so much money, so the doctor suggested that they go to the rehabilitation training of the child. Every time the rehabilitation training Xuebao cried a lot, the child was very uncomfortable, and recognized the birth. The rehabilitation teacher said that he could go to the hospital once every three months and usually do it at home. But at home nursing, must not let the child catch a cold, if The Snow Treasure has a cold and fever, it is easy to get pneumonia.
The picture shows Xuebao doing rehabilitation at home
In the 7th month, Xuebao would call Mom and Dad, but she couldn't stand, couldn't step, couldn't even climb. Zhao Dongqiong thought: If there is no disease, my child can also climb. Watching other people's children run and jump, but Xuebao can only hold, she is worried, and spends every day in torment.
The picture shows Zhao Dongqiong and Xuebao
Because Xuebao's treatment cost is larger, in order to earn more money to treat his daughter, Yang Chao went to work at the construction site. At first, it was OK, but the salary on the construction site was relatively high. But not long after working, Yang Chao cut the tendon of his arm while carrying glass, and went home to recuperate after staying in the hospital for more than a month. The family's economy was cut off and they could only rely on their parents for support.
On October 2, 2020, Xuebao fell ill, and Zhao Dongqiong and her husband rushed to take her to Nanqiao Central Hospital in Fengxian District. The doctor saw that it was severe pneumonia and suggested that they should be hospitalized immediately. After being hospitalized, the child's condition became more and more serious, and heart failure occurred, and the doctor asked them to transfer them and told them that the transfer process was also dangerous, and the patient's parents had to make a decision. Xuebao was soon transferred to Fudan Pediatrics. Ten minutes away, after arriving, Xuebao was immediately sent to the rescue room. The doctor asked the parents to go in and talk, saying that Xuebao had severe pneumonia and heart failure, and that he wanted to go to the intensive care unit, could not visit, and may be intubated later. All the possibilities were told to Zhao Dongqiong, and every possibility the doctor said was so cruel and terrible that it was difficult for Zhao Dongqiong to accept.
At 3 p.m. that day, Xuebao entered the intensive care unit, and Zhao Dongqiong and her husband were waiting outside. The doctor took a lot of things for them to sign, Zhao Dongqiong's heart trembled, her hand was shaking even more unable to hold the pen, she did not want her husband to sign, every thin piece of paper is related to the life of the daughter, all the materials related to the daughter she wants to personally look at, as if she has looked at the check, the daughter can add a layer of safety factor.
By 7:30 p.m., the doctor didn't say anything about the child's condition and asked them to go home. Back at home, my parents asked: What if Xuebao can't hold on? The husband did not speak, and Zhao Dongqiong did not speak. After a day of not eating or drinking, after a day when Xuebao's life was hanging on the line, she had no strength or mood to face their problems...
At 3 a.m., the doctor called to say that Xuebao was going to be intubated, and there was no way to support it without invasiveness. Before Zhao Dongqiong went to bed, she turned on the phone, but she was afraid that the phone would ring in the middle of the night. Irregular time to call, that must not be good news, she is afraid of bad news. Intubation heralded a worsening of her daughter's condition and heralded death as she moved closer.
Every day they went to the door of the intensive care unit and waited, every day, even though they didn't see their daughter once. "Only at the door can I feel the snow treasure, I can feel that the child is very close to me." Zhao Dongqiong said. At the beginning, every day was some bad news, and the family did not say anything in the early days of the child's illness. Later, some people began to persuade Zhao Dongqiong to give up, saying that the children were also suffering from this, and it was not good to spend money to cure them, and finally the people had two moneys.
Zhao Dongqiong said: "Facing the bad news of the hospital every day, I really broke down during that time and thought about any possibility. Because of my persistence, Xuebao may also feel that her condition is starting to improve day by day. I once thought that if Xuebao was gone, I would accompany her and not live, because I could not face the world without Xuebao. "
Due to Xuebao's illness and admission to the ICU, Yang Chao's second arm operation was delayed. Without secondary surgery, this arm may not be able to use force in the future, and it will be completely crippled.
That half month was the most difficult day for Zhao Dongqiong's family, and then the doctor said that Xuebao's condition improved, you can try to get out of the tube, Zhao Dongqiong and her husband promised to try it, but they were very nervous in their hearts, and they didn't know if Xuebao could get out of the tube successfully. Success is already there, and failure if it does not, it heralds the coming of death. At 8:00 a.m. the next day after the debossing, the doctor called Zhao Dongqiong and said that Xuebao could not support it without invasiveness, and asked them to go to the hospital to talk.
Such a small child was issued a critical illness notice by the doctor. "We've tried our best, so think of something else." The doctor said. At that time, Zhao Dongqiong's tears could no longer be held back, and her mentality collapsed instantly. After the birth of her daughter, half of the time is spent in the hospital, as a mother, she was not able to accompany the child's short life course throughout the whole process, she felt regret, but also felt helpless, felt the pain born in the depths of the soul. Her husband went to go through the discharge procedures, and Zhao Dongqiong had been sitting in the hospital corridor waiting. She couldn't believe that would be the result.
At 3 p.m., I received Xuebao, and Xuebao actually smiled when she saw Zhao Dongqiong's first glance. "The doctor asked me to hold her, I handed the bag to her father, and as soon as she saw me moving, Xuebao cried, as if she was worried that I would throw her down. The moment I held her, I felt like my baby daughter was thin and not as heavy as before. Zhao Dongqiong said.
Yang Chao was crying all the way, and the children were smiling at them all the way, at that time, Zhao Dongqiong felt good and sad... Back home, Yang Chao went to buy an oxygen concentrator, they still wanted to try, they couldn't bear to give up, in their hearts they stubbornly believed that Xuebao would not leave like this.
Miraculously, after returning home, Xuebao actually got better day by day, watching her get better and better, Zhao Dongqiong saw hope. Slowly, Xuebao can get out of the tube, just like before. Xuebao persevered, and she relied on her perseverance to overcome the disease and overcome the difficulties. The family also successively prepared machinery and equipment, but because there was no financial resource, those equipment were rented. They had spent all their savings, borrowed all the relatives and friends they could borrow, and now no one was willing to lend them money anymore.
Today, they have returned to their hometown in Sichuan, enrolled Xuebao in the household registration, and bought medical insurance. Now Xuebao is in a good situation, but SMA still bothers her, and only the hundreds of thousands of yuan of a special medicine can alleviate the damage of the disease to her. But in the face of such a high cost, Zhao Dongqiong only had a sigh.
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