In the summer of 2014, the carnival of a bucket of ice water became popular in the United States, and public figures from all walks of life participated in this carnival, but behind this activity, there is a group of sadness!
01 Ice Bucket Challenge Carnival
The Ice Bucket Challenge is a viral roll call game donated to the ALS (Amyotrophic Lateral Sclerosis) Association. The rules of the game are simple and easy to spread, everyone can participate freely, participants prepare a bucket of ice water to pour from scratch, at the same time name three friends, the named person needs to accept the challenge within 24 hours, or donate at least $100 to the ALS Association as a research fund for the disease.
As a public welfare activity out of the circle, its influence is global, in the United States alone, 1.7 million people participated in the challenge, 2.5 million people donated, of which there are many people from all walks of life who participate in the activity and donate, and it is with their popularity that this activity is popular all over the world.
Star "Ice Bucket Challenge" tournament
Among them, "Facebook" founder Zuckerberg posted a video of the "Ice Bucket Challenge" on his account and named Bill Gates.
Zuckerberg
Gates will then challenge the upgrade, hang the bucket on the beam, pull the rope, and the ice water can be poured, and then name Tesla CEO Musk and the other three.
Bill gates
In addition, Apple CEO Cook, Amazon CEO Jeff Bezos and other technology giants have participated, under the challenge of name again and again, the "war" spread all the way from the sports world to the technology world, and then from the technology world to the entertainment industry, even the political world has not been spared, Obama refused the "ice bucket challenge" and chose to donate. Under the viral spread, it can be said that it has caused a "carnival" for the whole people!
Cook
From Europe and the United States to China, the first to bear the brunt of the big man in the technology industry, Xiaomi Technology's Lei Jun was named by investor Yuri to participate in the "Ice Bucket Challenge", he was the "Ice Bucket Challenge" in China at the beginning of the naming of the public figure, and then he named Gou Taiming, Andy Lau, Robin Li, these three can be described as manufacturing, entertainment industry, Internet industry quite topical figures, is undoubtedly to maximize the influence of the "Ice Bucket Challenge".
Andy Lau, Robin Li, Lei Jun, Wang Sicong
It seems that in this "carnival", everyone has gradually lost the original intention of "ice bucket challenge" and become a simple social game...
Chen
Origin of the "Ice Bucket Challenge"
The Ice Bucket Challenge was not originally an activity that spoke for "Frostbite.". It is just an ordinary activity that speaks out for the public good, which is the meaning given by later people.
In the summer of 2014, Florida-based golfer Chris Kendini was named for the Ice Bucket Challenge by a friend who chose to relay for a charity focused on early childhood cancer treatment, while Kendini chose to pass on the challenge for the ALS (Amyotrophic Lateral Sclerosis) Association because his relatives suffered from the disease.
After that, the "Ice Bucket Challenge" spread widely among the frozen people with a very similar "symptom experience", of which Quinn was a key member of this communication network, and then under Quinn's transmission, it relayed to the key figure of the formation of the entire "Ice Bucket Challenge" network boom - Pete Fritz.
Pete Fritz
He was the star captain of the former Boston College baseball team, and in 2012, when the then 27-year-old Pitt was diagnosed with Frostbite, his career stopped forever.
In this activity, he saw the opportunity, he was determined to do something for the entire frozen people community, he posted his own challenge video on social media, and used his fame to post hashtags, and then the meaning of the "ice bucket challenge" was closely related to the frostbite, and it also deepened in successive relay activities.
This summer, 220 million yuan was raised to fund the research of the disease, and more people paid attention to alzheimer's disease. Unfortunately, in 2019 and 2020, the two initiators passed away one after another, but the frozen public welfare fundraising activities they left behind are still in progress...
02 "Frostbite" and "Ice Bucket Challenge"
Frostbite
The scientific name of "frostbite" is called amyotrophic lateral sclerosis of the spinal cord, which is a motor neuron disease, referred to as ALS for short.
Due to the degeneration of motor neurons caused by the atrophy and weakness of the muscles of the whole body, the initial manifestation of "frostbite" is muscle weakness, slurred speech, as the symptoms become more and more serious, more and more body parts are affected, and eventually the weakness of respiratory organs leads to respiratory failure, and the patient can only rely on ventilators to maintain life.
The whole process of the body is like being slowly "frozen", and the patient can only watch all this happen slowly, but can not stop it, the famous physicist Hawking, and the founder of childhood memory SpongeBob SquarePants, are the result of this death.
Hawking
The significance of the Ice Bucket Challenge
At present, there is no drug in the world that can cure "frostbite", and only some delaying drugs can be used to fight for the time limit of life. The research on this disease has also been ineffective because of the financial problems, so the public welfare fundraising of the "Ice Bucket Challenge" is like a long-awaited Ganlin in the field of long-drought frostbite disease research!
The spread of the "ice bucket challenge", riding on the express train of the network, let more people know what kind of disease the gradually frozen people are, it is like the moment when the ice water falls, the nerves are numb and weak, but normal people will rebound after a few seconds to "jump up", but the "gradually frozen people" can only struggle in the body again and again, despair again and again, until the respiratory organs are completely closed, and they can no longer breathe a trace of air...
03 "Melting the Frozen Heart"
The global boom of the ice bucket challenge has undoubtedly brought more attention to the frozen people in various countries, and the number of confirmed cases of frozen people in China is as high as 200,000, while the attention received before is very small! This time may be an opportunity to warm more "frozen hearts"!
China launched the "Thawed Frozen Heart" public welfare project as early as 2005, after more than ten years of development, but the public welfare organization was pointed out to be illegal operation in 2018, the public welfare project was shelved, not to mention how it was after that, the previous diagnosis and treatment was also suspicious, which shows that the public welfare environment of "frozen people" is not optimistic!
In China, the research on "gradual frostbite" is quite scarce, the misdiagnosis rate is high, the medication is not standardized, and even some patients have done a lot of unnecessary surgery. Second, even if the diagnosis is correct, the cost of long-term medical care during the period is often not affordable for ordinary families. In 2017, the medical insurance reimbursement policy for the disease was piloted in Beijing, and various drugs have also entered the medical insurance drug pilot, but it will take time to fully roll out.
21 June World Frost Day
The process of medical pilot is slow, can only rely on the assistance of some non-governmental public welfare organizations, I have to say that China's "frostbite" is still facing great challenges, there are many gradually frozen people are being slowly "buried", waiting for the rescue opportunity to come!
04 Pay attention to the "frozen people"
As people living under the same blue sky, everyone comes and goes in a hurry, and the "frozen people" can only watch all this happen, but they can no longer feel the meaning of life. They have experienced the separation of spirit from flesh, and can no longer combine them, but can only wander on the brink of life and death, waiting for life to die...
After being diagnosed, they can only accept the judgment of fate and struggle powerlessly, but during this period they can still feel "love", that is, this invisible and untouchable thing, so that their final life can be complete.
Therefore, I hope that the society can give this group a little more care and love, and I hope that people can also see their silent silence churning to the will to life, I hope that after many years, China and even the world will no longer have this terrible disease, and I hope that all the frozen people can no longer suffer!