In 2021, a shocking story quietly spread in China. A father named Xu Wei in Yunnan Province resolutely embarked on an unprecedented path in the face of his son Xu Haoyang's rare congenital copper metabolism abnormality.
This ordinary person with only a high school education, when medical experts were helpless, successfully developed a drug that saved his son's life by teaching himself to medicine.
Xu Wei's story is not only a testimony of a father's infinite love for his son, but also a microcosm of human perseverance in the face of desperate situations. His experience was like a ray of light in the darkness, not only bringing hope to his own children, but also lighting a fire of faith for other families facing the same dilemma.
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How did Xu Wei achieve this seemingly impossible task step by step? Let's walk into the world of this ordinary but great father together, and witness how love and determination overcome the ruthlessness of fate.
In 2019, Xu Wei's family in Yunnan ushered in the arrival of the newborn Xu Haoyang, and the whole family was immersed in joy and looking forward to a better future. However, this happiness is as fragile as a bubble, and it is soon ruthlessly shattered by a medical certificate.
When Xu Haoyang was only half a year old, Xu Wei and his wife noticed that the child's development did not seem normal. Xiao Haoyang was unusually slow in basic movements such as turning over and raising his head, and he was unable to react for a long time.
At first, they thought it was just a slow growth caused by malnutrition, so they did their best to supplement their children with various nutrients. However, as time went on, the situation did not improve, but worsened.
With apprehension, Xu Wei and his wife decided to take their child to the hospital for a comprehensive examination. They went to the First People's Hospital of Yunnan Province and the General Hospital of the People's Liberation Army in Beijing, hoping to get different diagnoses.
However, the conclusions given by the two hospitals were surprisingly consistent: Xu Haoyang suffered from a rare congenital abnormality of copper metabolism.
This diagnosis was like a thunderbolt from the blue, instantly crushing Xu Wei and his wife. Doctors reluctantly said that there is no effective treatment plan at present, and they can only wait for the onset of the disease to carry out symptomatic treatment.
Even more desperate, they learned that the average life expectancy of people suffering from the disease was only 19 months.
Faced with this cruel reality, Xu Wei and his wife fell into great pain and despair. They tried to treat him with a trace element supplement, but a month later tests showed that the copper levels in Xu's body had barely changed.
Looking at his infant son, with an innocent smile on his immature face, but not knowing that he was facing a threat to his life, Xu Wei felt like a knife in his heart.
He and his wife were relatively silent, tears rolling in their eyes. They know full well that if they don't take action, they could lose this hard-won little life forever.
At this seemingly desperate moment, a faint but determined flame ignited in Xu Wei's heart. He secretly made up his mind that no matter what the cost, he would find a way to cure his son.
This decision will completely change the fate of their family and will also bring hope to other families facing the same predicament.
Faced with the helplessness of the medical community, Xu Wei did not give up hope. He embarks on a quest against time to gather all the information related to his son's condition.
He joined a patient exchange group, hoping to find a glimmer of life from the experiences of other families.
In the process, Xu Wei learned that a drug called copper histidine might be effective against the disease. However, he soon discovered that the drug was not marketed in China, and only a few foreign studies reported that it was mentioned.
Faced with this dilemma, a bold idea flashed in Xu Wei's mind: to make his own medicine.
This decision was a surprise to all.
Xu Wei began the arduous road of self-study. He searched for a lot of relevant literature on the Internet, but soon ran into a huge problem: most of the research literature was in English and full of jargon.
For Xu Wei, who is not very good at English, these documents are like heavenly books.
But Xu Wei didn't back down. With the help of translation tools, he compares and analyzes word by word. The process was tedious and often exhausting for him.
Whenever he wanted to give up, he would look at his sleeping son, whose immature face gave him the motivation to keep going.
After unremitting efforts, Xu Wei finally understood the basic principles of making medicines. The next step is to buy equipment, which is a significant expense for an average family.
After careful calculation, Xu Wei found that it only cost 20,000 yuan to buy a complete set of basic pharmaceutical equipment. Although this is a big burden on the family economy, Xu Wei resolutely made this decision for the sake of his son's life.
In his garden, Xu Wei built a simple glass experimental room. Since then, this small space has become a place where he struggles day and night. Every failure of the experiment hurts his heart, but he knows that every failure also means one step closer to success.
Finally, after countless sleepless nights, Xu Wei successfully developed the first batch of drugs. Tears of excitement flowed unconsciously as he held the vial containing the medicine in his hand.
This is not just a bottle of medicine, but also carries all the hope and love of a father for his son.
Xu Wei's determination and perseverance touched many people. Some people praised him as the "God of Medicine", but Xu Wei modestly said: "I am just an ordinary father who wants to save his children."
This humility is even more indicative of his greatness.
On this road of self-learning pharmacy, Xu Wei has made unimaginable efforts. Not only did he have to overcome language barriers, understand complex medical knowledge, but also face setbacks in his experiments.
But it was this indomitable spirit that allowed him to finally work miracles.
Xu Wei's story is not only a touching story of a father saving his son, but also an inspirational legend of an ordinary person who realizes the impossible through self-study. His experience has taught us that perseverance and determination can work wonders when faced with seemingly insurmountable odds.
Despite the difficulties ahead, nothing is impossible with hope and love.
The successful production of the drug is only the first step in Xu Wei's journey to save his son, and then there is a more difficult trial stage. As an ordinary person with no medical background, Xu Wei knows that any small mistake can endanger his son's life.
To ensure the safety of the drug, he decided to test on animals first.
Xu Wei chose rabbits as the experimental subjects. Every day he carefully injects the rabbits with drugs and then nervously watches their reactions. In this process, Xu Wei's mood fluctuated like a roller coaster.
Every injection made him nervous, for fear of any adverse reactions. Two weeks had passed, and the rabbits had not shown any abnormalities, which made Xu Wei breathe a sigh of relief.
However, there is a huge difference between humans and animals. In order to further ensure the safety of the drug for humans, Xu Wei made a decision that shocked everyone: self-testing.
When he revealed this decision to his family, he was immediately met with strong opposition. His parents even got into a heated argument with him, and their tears were filled with worry and fear for their son.
In the face of his family's opposition, Xu Wei said firmly: "As long as there is a glimmer of hope, I will go all out, please understand." He explains that the drug is administered by subcutaneous injection, and even if there is bacterial contamination, the impact is relatively small.
Still, he knew in his heart the risks of this decision.
On a quiet night, Xu Wei took a deep breath and injected the medicine he had developed into his body. At that moment, his heart was both nervous and expectant. In the days that followed, everyone hung a heart for him.
Fortunately, the drug did not produce any adverse reactions, which gave Xu Wei great confidence.
Despite the success of his self-experiments, Xu Wei was still very cautious when it came to injecting his son with drugs. He lowered the dose and carefully injected his son with the drug, expecting and apprehensive.
Every injection was an ordeal for Xu Wei, who was both afraid of the possible side effects of the drug and hoping that it would work wonders.
Two weeks later, Xu Wei took his son to the hospital for a comprehensive examination. When the inspection report came out, everyone was so excited that they burst into tears - Xu Haoyang's liver, gallbladder and kidney function had completely returned to normal levels! Looking at the ruddy reappearance on his son's face, Xu Wei finally showed a long-lost smile.
This result not only proves that his efforts have not been in vain, but also gives him the motivation to keep going.
Xu Wei's self-experimentation shows the selfless courage of a father who is willing to take risks in order to save his child's life. He used his actions to interpret the greatness of fatherly love, and also brought a ray of hope to other families facing the same predicament.
Despite the initial success, Xu Wei knew that there was still a long way to go before he could completely cure his son's illness. He realized that his medical knowledge was far from enough, and that more specialized and in-depth research was needed to truly conquer this rare disease.
So the young father made a surprising decision: to go back to school.
Xu Wei resolutely signed up for the adult higher education examination and aspired to pursue a master's degree. This is undoubtedly a huge challenge for a middle-aged person with only a high school degree.
Every night after taking care of his son, Xu Wei would study hard until late at night. His desk is stacked with medical books and research papers, and his walls are plastered with all sorts of complex chemical formulas.
Although the learning process is difficult, every time he sees his son's healthy growth, Xu Wei feels that everything is worth it.
In his in-depth research, Xu Wei discovered another drug called copper ilismo, which may have a significant effect on his son's condition and can effectively prevent cranial nerve degeneration.
Xu Wei was greatly encouraged by this discovery, and he immediately devoted himself to the research of new drugs.
After three months of unremitting efforts, Xu Wei successfully prepared ilismo copper independently. This success not only brought new hope for his son's treatment, but also allowed Xu Wei to take an important step forward in the field of medical research.
Xu Wei's efforts soon attracted the attention of the medical community. He began to collaborate with a number of medical institutions to promote rare disease research. Three gene companies, a cell company and a hospital have extended a hand to Xu Wei, which not only brings new possibilities for Xu's treatment, but also brings hope to other patients suffering from the same disease.
Xu Wei's story goes from an ordinary father teaching himself to pharmaceuticals to becoming an important force in promoting rare disease research, showing the extraordinary actions made by ordinary people. His experience is not only a touching story of fatherhood, but also a vivid interpretation of the spirit of scientific research.
Xu Wei's deeds quickly spread on the Internet and touched countless people. His self-taught pharmacy, risk-taking experiments, and back-to-school experience show the boundless efforts of a father to save his child's life.
This touching story has aroused widespread concern in the society, and many enthusiastic people have contacted Xu Wei and expressed their willingness to provide financial assistance.
To everyone's surprise, however, Xu Wei resolutely rejected the offer to accept donations for his son alone. His decision was admirable. Xu Wei said: "I can't just focus on bringing warmth to myself and ignore the people who are still in the cold.
He decided to put all of his donations into research into congenital abnormalities of copper metabolism and provide free medication to other sick children.
This decision has earned Xu Wei the respect of more people. Some people call him the "God of Medicine", but Xu Wei modestly says that he is just an ordinary father. "I just want to do everything I can to get my son back from the disease," he said.
This humility shows his greatness even more.
Xu Wei's actions not only saved his own son, but also brought hope to other families facing the same predicament. His story has inspired more people to pay attention to rare disease research and promoted the investment of related medical resources.
Today, Xu Wei has established cooperative relations with a number of medical institutions. Three genetic companies, a cell company, and a hospital are working with him to advance research on rare diseases such as Menke's disease.
Xu Wei hopes that through these cooperation, he can promote in-depth research on rare diseases in mainland China, and finally solve these disease problems once and for all.
Xu Wei's story is not only the greatness of a father, but also a model of an ordinary person doing extraordinary things. He interpreted the greatness of father's love with practical actions, and also showed the brilliance of human nature.
This simple and fiery love not only warms a family, but also illuminates the hearts of countless people.
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