On Douyin, there is a most special anchor.
Not only is the style of painting completely different, others are full of energy and shouting to bring goods, but he is soft and weak.
The purpose of the live broadcast is also different from others. Others broadcast live to make money, but he broadcasts live to spend money.
Even so, he can attract Zhang Lan to the live broadcast room to help him, shouting his son Wang Xiaofei to come to the carnival, and even topped the platform with goods.
He is Cai Lei, who is still struggling with ALS, and many people may have heard of him, or because of Liu Qiangdong.
In 2019, when Cai Lei was still the vice president of Jingdong Group, Liu Qiangdong learned that his subordinate Cai Lei had ALS, an incurable disease in the world, his first reaction was to find an expert for him. However, Cai Lei resolutely refused Liu Qiangdong's help, saying that he didn't need a penny.
But Cai Lei, who has long been out of the business world, is now charging on the front line in another form.
Both mentally and cognitively, more than 100% of the workers.
Rather than being an anchor, it is better to say that a fighter is more suitable, the fighter Cai Lei's illness has entered the second half, but he has also entered the deep stage of the most life tension in his life, that is:
Fight with others, fight with the sky, fight with yourself.
Fight with yourself:
The bath is hung with a rope and has to work for 16 hours
Before he got sick, Cai Lei in the workplace was proud all the way.
Originally born in a poor area of Henan, he worked hard all the way from "being a homemaker in a small town", worked in Samsung and Vanke, and the most well-known title was the vice president of Jingdong Group, and he was also the object of his peers.
He once led the team to issue the first electronic invoice in Chinese mainland for JD.com, and also established a number of companies to start a business, if there is no accident, I think it will continue to do.
He threw himself into his work, but he unexpectedly received the "bad news" of fate. In the year of 2019, I don't know when it began, from the left hand was weak and the fingers could not be lifted, and then spread to the right hand, and then slowly until both hands couldn't even click the mouse, until the hospital gave him a definitive blow - diagnosed with ALS.
From the high-ranking president to the fact that even the dignity of ordinary people may be lost, in the face of the huge gap, Cai Lei's first reaction is pain, and even sometimes the thought flashes: Forget it when you die, let it all end quickly.
didn't want his family to suffer this kind of physical and mental torture again, and once filed for divorce from his wife.
But after thinking about it, there are still a lot of things to do in this life, Cai Lei is unwilling to leave like this, coupled with the past counterattack and hard work habits in the workplace, Cai Lei feels that he still has a lot of possibility to resist.
So, Cai Lei made a decision - to survive first and fight with himself.
At first, he was weak in his hands, but he came up with a solution and invented a foot-controlled mouse that could type.
The degeneration of the neck muscles made it a little difficult for Cai Lei to even speak as a trivial matter, and his voice became thin and sharp, and he couldn't speak?
Later, ALS gradually destroyed his ability to take care of himself, drinking water, eating, and going to the toilet..... He simply asked a life assistant to help.
This year is the fifth year of his fight against ALS, and his body is nearing the end of the disease.
Seeing that the stiff parts of my body are getting more and more, "my spine is crooked", "my tongue and lower lip are atrophied", and "I sleep on a ventilator every day". The problem of eating that ordinary people can solve in 20 minutes, he has to eat for nearly 40 minutes.
The place where tools are needed is even more unthinkable, "I have to take a shower with a rope and hang me on the wall".
Even seemingly ordinary actions in daily life can be fatal if you don't pay attention to them, but in this case, Cai Lei's struggle against himself has never stopped.
He himself said, "At least seven or eight key colleagues worked with me every day until 10 or 11 o'clock in the evening. ”
Even if his illness has become more and more serious over the years, Cai Lei's habits have been very stable, he mostly goes to the office to work at 7 or 8 o'clock in the morning, until he goes home at 11 o'clock in the evening, goes to bed at 12 o'clock, and is even more ruthless, working nearly 16 hours a day.
It is worth mentioning that in recent years, there have been more live broadcasts, and the money earned is also to invest in their own scientific research projects.
According to media reports, even the team volunteers around him are very distressed, "Normal people rarely work sixteen or seventeen hours a day, but Cai Lei can do it, including when he is sick and coughs out of breath, and he still insists on holding meetings." ”
Fight with the industry:
suffocated 4 times in one night, but had to donate another 100 million
started fighting with himself, Cai Lei changed his WeChat avatar to Sun Wukong, "After being pressed for 500 years, I can still get out." Many people don't understand, why does Cai Lei have to fight so hard?
Because if you have the idea of surviving, it doesn't mean that you can survive.
As we all know, ALS is the world's first terminal disease, and the average survival time of patients is only 2-5 years, during hospitalization, Fan Dongsheng, director of the Department of Neurology of Peking University Third Hospital, once explained to Cai Lei that the cause of ALS is unknown, one of the reasons is that it is a rare disease, the incidence rate is low, and the sample data that doctors and scientific research institutions can grasp is insufficient, and the probability of cure is also very low.
From 2003 to 2017, there were only more than 4,600 cases registered in the hospital, and about 23,000 new cases of ALS were added in mainland China every year.
And Cai Lei was not reconciled, "For this one percent hope, I am willing to pay 100 percent effort." ”
Behind this, is the second battle that Cai Lei has to fight in his not-so-bright life: fighting against industry problems.
Cai Lei didn't just talk, but made extremely difficult efforts. Many people don't know that Cai Lei has made a lot of achievements over the years:
Cai Lei's scientific research team has established the world's largest ALS platform, and there is no one;
More than 12,000 patients have been registered for the "Gradual Healing Mutual Aid Home" established by Cai Lei, and hundreds of people are registered every hour for every recruitment information released on the platform;
At the beginning of this year, Cai Lei announced that he and his wife would donate another 100 million yuan to support scientific research projects to overcome ALS;
In his spare time to overcome the world's problems, Cai Lei also found time to publish a book - "Believe", recording the process of his struggle against the disease.
The difficulty of achieving these achievements is 10 for a healthy entrepreneur, and hundreds or thousands of times more difficult for a person with ALS, which can be called hellish.
Cai Lei was born in the Internet, and his ten years of experience in the Internet industry made him very sensitive to data, so he simply used the advantages of his old bank to collect the data of domestic ALS patients and establish a big data platform.
But before the platform was built, Cai Lei didn't understand anything at that time, and the premise of defeating the opponent was to understand the opponent.
So, at the end of 2019, when he was still hospitalized, Cai Lei began to read ALS-related papers, and bought more than 70 professional books before and after, turning from a layman to a half-expert.
But the problem is that there are too many related books, there are about 30,000 papers directly related to ALS, and there are highly related papers such as Alzheimer's disease and Parkinson's disease that need to be studied, adding up to 1.5 million.
After being discharged from the hospital in 2019, Cai Lei began to build a patient database non-stop.
For example, the patient's specific situation, the progress of the disease, etc., details such as what position the patient's hand can be raised, how many times the patient has a bowel movement after taking the medicine, etc., are updated monthly or weekly.
He did the details of the work of overcoming the disease himself, and Cai Lei also came by himself to find money.
Although as a business tycoon, Cai Lei has long achieved financial freedom, but it is far from enough for him to throw all his money into drug research and development, after all, a small project, "spent 90 million for six months." ”
In order to get more money for R&D, starting in 2021, Cai Lei has visited more than 100 entrepreneurs and investors in a row, and the results obtained from the roadshow for a few hours every day are not satisfactory. ”
Cai Lei didn't want to accept his fate, others couldn't help him, so he tried his best to raise money. In July 2021, he launched the "Ice Bucket Challenge" and raised 2 million yuan in more than a month.
Even if he did this, in order to attract more people's attention, he didn't even dare to show fatigue in his daily life, he suffocated 4 times the night before, and he still looked normal when he appeared in front of the camera the next day.
All for his hopes:
"If there is a significant decrease in the ability to work, the ability to promote treatment will be reduced. ”
Fight against fate:
"Give me time is too short, if 10 years, kill it in seconds"
Reality is not a movie after all, and Cai Lei is not the male protagonist of Shuangwen.
After struggling with industry problems for 5 years, Cai Lei suddenly found a bigger problem-
Time is running out.
The average survival time of ALS patients is only 2-5 years, and Cai Lei has initially challenged the limit in a blink of an eye, but these 5 years are also a drop in the bucket for completely overcoming ALS.
In a recent interview, Cai Lei, who refused to admit defeat, smiled, and a trace of contempt flashed in his eyes.
"The time given to me is too short, if you give me ten years, kill it in seconds. ”
Many people may think that this sentence is a bit exaggerated, but in fact, it is not impossible.
Because of this struggle with fate, Cai Lei has won many times.
Just last year, the efforts of Cai Lei and his team made a considerable breakthrough in ALS, which has always been called "the most difficult to overcome", and some people described it as "he shortened the entire ALS research and development process by 10 years".
The team has identified potential therapeutic targets in a large amount of data, and the number of drugs and therapeutic pipelines has increased to more than 100, and some have even entered clinical trials.
What's even more ruthless is that Cai Lei's team has established cooperation with ALS experts at Massachusetts General Hospital affiliated to Harvard Medical School, and has begun to have the world's top medical team as support.
The live broadcast that no one was optimistic about once brought returns with persistence, and I couldn't make money in the past six months, but I didn't expect to rush to the first place in the list of goods later.
Cai Lei not only changed his fate in many things, but also changed many people.
The family members of ALS patients directly joined Cai Lei's team, who used to die in despair, and spent every day in hope after knowing Cai Lei.
Some patients said that if it weren't for Cai Lei's insistence on overcoming the disease, they might have chosen to commit suicide.
In rare disease groups such as ALS, Cai Lei has become a "hero" in their eyes. In addition to the ALS group, Cai Lei has also been supported by more and more people over the years.
Nigmat even praised Cai Lei as a hero who fought against illness with a spear.
In "I Am Not the God of Medicine", the little character Cheng Yong played by Xu Zheng has become the lifesaver of countless patients by various coincidences.
But outside of the movie, Cai Lei's experience can be said to be more difficult and legendary than Cheng Yong, and when he is already seriously ill, he has to overcome a scientific research project comparable to hell.
What is a hero? We think that heroes are to save all living beings in the world, but sometimes in life, those who fight with all their strength in order to survive are also more worthy of admiration.
In the most difficult moment, Cai Lei still did not give up any hope, this man who once worried the whole network, is now getting more and more serious.
In the latest interview video, his voice has become more and more muffled, because his tongue and lower lip have atrophied, but he still insists, "I still look forward to that day, before I collapse, to get rid of ALS." ”
It's not uncommon to escape from the hands of death, and being able to face critical attacks with it for 5 consecutive years is the most ruthless person.
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