"Thank you very much, the child is already on the ventilator. I didn't expect to make a hotline call, I was really touched by the help of so many people..." On the afternoon of April 5, Mr. Wan, who lives in Jiangqiao Town, received a ventilator sent by the staff across the district and was excited.
It turned out that Mr. Wan was the father of a 3-and-a-half-year-old baby, and because the child suffered from a rare disease and urgently needed a ventilator to maintain his life, he called the 12345 citizen service hotline for help.
Mr. Wan said that the child was diagnosed with mitochondrial encephalomyopathy in March last year, and at first it was only limb weakness and unstable gait, but he did not expect that speech, hearing and intelligence were affected, and sometimes a little attention was also life-threatening. "One day last month, we thought the baby was asleep, but we didn't expect that she had actually fallen into a coma and her breathing was particularly weak. We kept calling her name until half an hour later when the baby slowly woke up..." Mr. Wan said somewhat choked as they took the child to the hospital, stayed in the ICU ward for more than 20 days, and then took it home to take care of it.
Breathing in and out is the imperceptible lightness of life, and it is also the unbearable weight of life. "In this case, the baby needs a ventilator at night to assist in breathing, so I ordered one on the e-commerce platform." Mr. Wan said that because the community where the merchants live and the company's warehouse are located in Zhuanqiao Town, Minhang District, especially the community is under closed management, it has not been able to deliver the goods.
At 9:00 a.m. on April 5, the Jiading District Urban Transportation Center learned of this situation through a telephone return visit. "The situation is urgent, we immediately reported to the Municipal Hotline Office, and contacted the Minhang District Urban Transportation Center to discuss a feasible plan." Wang Wei, deputy director of the Jiading District Urban Transportation Center, said that in this way, from the Jiading River Bridge to the Minhang Bridge, under the linkage of "two districts and two bridges", a cross-district relay began.
At 11:30, the staff of Jiangqiao Town Urban Transportation Center took a special pass and drove to Zhaoqiao Town, Minhang District, to pick up the merchant Ms. Xue from the community to the warehouse to pick up the goods. "I'm in this line of work, and I can especially understand the feelings of the father of the child. So in addition to finding the ventilator he bought, he also took the filter, nebulizer, disinfection equipment and other supporting items from the warehouse and gave it to him for free. Ms. Xue told reporters that the relevant departments of Zhaoqiao Town contacted her neighborhood committee and issued a permit for her to ensure safety. After picking up the goods, the staff sent Ms. Xue back to the community and returned immediately.
At 1 p.m., the car carrying the hope of life finally arrived in Jiangqiao Town, Jiading District. In less than 4 hours, the ventilator spanned two boroughs and was finally delivered to Mr. Wan... With the efforts of many parties, this cross-regional relay was successfully completed. "In the face of the epidemic, we are all willing to make our own efforts." The staff said he did not want to be named and only hoped to do a modest job for the children.
In the past few days, the child's condition has touched the hearts of many people. Mr. Wan told reporters that within a day, he received more than a dozen calls of concern from the district government, urban transportation centers, communities, and enthusiastic citizens, and one netizen expressed his willingness to provide an oxygen concentrator unconditionally. "At that time, we were really anxious, and when I called the hotline, my wife also posted a message for help through Weibo. Coincidentally, a strange netizen about a kilometer away from my home privately wrote to us that he had an oxygen concentrator at home to support us. "Mr. Wan said that after the staff of the neighborhood committee brought the oxygen concentrator to them for emergency, the child's condition improved somewhat." However, after all, the oxygen concentrator can not replace the ventilator, fortunately there are two districts of the relevant departments to coordinate from it, really helped us a lot, but also gave me the confidence to support! ”
It is understood that mitochondrial cerebral myopathy as a congenital genetic disease, the current medical means can not be cured, hospitalization, drugs, medical equipment, etc., are a lot of expenditure. For the sake of the children, Mr. Zhuang's family has spent hundreds of thousands of yuan in a year, and some people have advised them to give up treatment, but Mr. Zhuang said: "As parents, how can we give up?" We gave her life and gave her a future. ”
Written by: Yang Yujie
Camera: Sun Yuhao
Image: Courtesy of the interviewee
Editor: Ni Dandan