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Is growing too beautiful is also a disease?

Digging sauce also dug up a beautiful cub in Douyin - Lan Nini, when other children are still relying on cuteness to conquer netizens, she has gained nearly 200w of face powder with her doll-like appearance.

Is growing too beautiful is also a disease?

Fleshy baby fat with tight jaw angles, is not a long stumped peach heart face, small nose, cherry mouth and curved and thin eyebrows also seem to have been transformed, natural and delicate, as well as from the womb on the shape of the eyes, not only eyelashes naturally curled with eyelids down, the eyeballs are also moist and clear like black grapes beautiful pupils.

The whole "Doll Generation".

Is growing too beautiful is also a disease?

The comment area is exaggerated every day, after all, the daughter who has opened a beautiful face in the womb does not enter the pit?

Is growing too beautiful is also a disease?

So whether Nini is playing with herself in the mirror and sighing, or sitting casually on the bed, wearing a pigtail, and performing a yawn for everyone,

Can the mom fans in front of the screen watch it with relish? I don't know if you like to dig up sauce and yawn, with an online live broadcast to sleep? (bushi)

Even if you only use all kinds of cute props on the vibrato, even if you write a few words on your face, and eat candy with a salary, the aunts and uncles are also happy.

Is growing too beautiful is also a disease?

It turns out that being a beautiful girl also has this advantage, and you can get a lot of love by taking a random pat.

But with a doll-like face, it should have been a meticulous work of Nuwa, born to eat by the face of the contestant, the entertainment company to develop the number one goal, but what makes fans sad is that behind the beauty is an irreparable regret, she can not even have the most ordinary life of ordinary people.

Is growing too beautiful is also a disease?

Nini, who looks cute and innocent in the video, actually suffers from a rare genetic disease, which makes it impossible for her to grow up like a normal child, and her inner world is still stagnant, and even regressive.

Nini is almost six years old this year, but her cognitive level is still stuck at about one year old, and her parents still have to take care of her like a small baby.

Is growing too beautiful is also a disease?

She couldn't speak, and although her mother tried to teach her over and over again, the words that the adults tried to communicate were only "meaningless notes", and she could not respond, but could only look emptyly in the direction of the sky with her beautiful big eyes.

Is growing too beautiful is also a disease?

And Nini has almost no cognitive ability, can not perceive danger, does not know the road, can not live on her own, and more cruelly, the doctor told her parents that she may slowly lose the skills of walking, eating and other skills that she has learned so hard to learn, and become a vegetative person.

Is growing too beautiful is also a disease?
Is growing too beautiful is also a disease?
Is growing too beautiful is also a disease?

Ailments with beautiful faces

After reading her story, according to her appearance and symptoms, many netizens believe that Nini changed into "Kabuki Face Syndrome".

Patients with this disease have thick eyelashes, eyelids down, and a rosy face, like the heavy makeup after Japanese Kabuki makeup. So many people think that Nini is exceptionally beautiful because she is sick.

Is growing too beautiful is also a disease?

But her father said that the beauty was just a coincidence, and that she actually suffered from "a neurodegenerative disease with cerebral iron deposition type 6 genetic disease", and the overall incidence of newborns is 2 to 3 million, which is extremely rare.

Symptoms are gait abnormalities, dystonia, resting tremor, athetosis, chorea, dysarthria, etc., with or without intellectual decline, spastic paraplegia, ataxia, mental and behavioral abnormalities, and neurodegenerative changes such as "motor and cognitive function regression" in the late stage of the disease, which is extremely cruel.

Is growing too beautiful is also a disease?

In fact, when Nini was just born, like most families, the family was immersed in the joy of the arrival of new life, but when Nini was half a year old, her parents found her unusual, her head could not stand upright, her hands were always shrugged, and the development process of healthy babies was obviously different.

Is growing too beautiful is also a disease?

After noticing the child's abnormality, Nini's parents immediately took her to check, and the diagnosis process was extremely difficult, and she traveled to three cities before Lan nini's illness was diagnosed.

That is, we just said that genetic mutation diseases caused by autosomal recessive inheritance.

Beautiful girls know that mom and dad will provide us with an autosomal X, and both parties carry the disease-causing gene, and the genetic process will become like this:

Is growing too beautiful is also a disease?

The probability of two millionths in statistics worldwide, and the probability of 25% in biology, falls on Lannieri and becomes 100%.

Nini's father also hated why his love affair with his wife would bring misfortune.

Is growing too beautiful is also a disease?

But what makes the family even more sad is that there is no specific medicine for this disease, which is what people call an incurable disease.

An article by experts from Xiangya Hospital of Central South University wrote:

"As the pathogenesis is unclear, the main therapeutic goals are to reduce iron deposition, alleviate symptoms, delay disease progression, and improve dystonia, such as symptomatic therapy with behexol, baclofen, levodopa, iron chelating agents, and deep brain stimulation."

Current treatments are based on the symptoms of the disease and do not address the cause.

Nini was also going to cry and get pricked by the needle to stimulate her reaction.

Is growing too beautiful is also a disease?

This lies in the cruelty of fate, which allows people to struggle but never gives hope.

These healing processes, like the self-exile of King Oedipus to escape the oracle, like Sisyphus pushing the boulder day after day, are simply returned to the original point and reached the doomed end.

Is growing too beautiful is also a disease?
Is growing too beautiful is also a disease?

The life she doesn't want is also entering the "countdown"

"It's a pity" is the first thought that everyone knows nini has a rare disease.

Her life has not yet begun, but it has entered the countdown, with amazing beauty but can not have a living life, like a bad joke made by heaven.

Is growing too beautiful is also a disease?

Initially, netizens left messages for Nini's parents, recommending reliable doctors and hospitals for them. Some people also shared their own experience in the treatment of children with autism, hoping to really help Nini.

There are also warm netizens who weave various beautiful little stories for her:

They say Nini is a little fairy. The little fairy was demoted to mortal robbery for violating the Heavenly Rules, but the Heavenly Court did not want her to endure too much mortal suffering, so it sealed her wisdom, and finally she would return to heaven painlessly and become a carefree fairy again.

Like Mom and Dad, netizens choose to believe in miracles, believing that love must be able to create miracles.

Is growing too beautiful is also a disease?

This gave Nini's parents great encouragement, when Nini was first diagnosed, her parents were not angry, desperate, hated heaven, why should they force Nini such a "life she didn't want". The large amount of treatment fees and the discussion of the people around them were pressed on them like mountains.

When their hearts are shaken, they even think about giving up. Especially Nini's mother, living in pain every day, as the person who brought her to this world, she prayed that one day the baby would give herself a response, carefully recording her daughter's every move, like holding a porcelain doll, loving and afraid of breaking and losing.

Is growing too beautiful is also a disease?

This feeling of despair, Nini's mother has been feeling for five years. But in the end, it is still the mother, who gives the smiley face to the child after the pain.

Is growing too beautiful is also a disease?

Nini's father, on the other hand, silently assumed the responsibility of supporting the family. He took a job at height, hanging on a dozen-story building to wipe glass, high-risk, but also well-paid. These treatment fees are the hope of his daughter's recovery.

Because of taking responsibility and bearing the hope of Ninisheng, Dad is willing to do the hands that hold her, while comforting himself over and over again, "I raised you like a baby for five years, you have no trouble in this life, how good."

Is growing too beautiful is also a disease?

Some netizens left messages asking them to give Nini another brother or sister, and then be able to take care of her instead of them. But they refused, because of the 25% chance, they did not dare to gamble, and now they just want to take care of their daughter single-mindedly.

Is growing too beautiful is also a disease?

But they wanted Nini to get better, and they wanted her to be a fairy.

Is growing too beautiful is also a disease?

And Nini, it seems that she also feels the expectations of her parents, although she can't speak yet, she has been making progress, responding to her parents with her small body, she has learned to walk, learned to eat by herself, and her eyes seem to have a slow look.

Is growing too beautiful is also a disease?

She was happy and was mom and dad's current tiny wish.

Is growing too beautiful is also a disease?

The family is working hard, and Mom and Dad don't show her as a "beautiful doll without a soul".

Is growing too beautiful is also a disease?

Because she was real, her perception was imprisoned in a beautiful body, and those unbearable cries, suspicious sluggishness, and small emotions were all proof of her attempts to break free.

She may never understand the word "struggle," but she has never stopped fighting since birth, and she herself and her parents are witnesses.

Is growing too beautiful is also a disease?

Think about it, in the adult world, after illness is fear, is unwilling, and then transformed into sadness and self-pity, perhaps sometimes calm and sometimes hysterical, sometimes want to be strong and sometimes want to give up, and finally face reality, plan your own countdown life, and leave traces of your own passing in this world.

But the ignorant child, "she was born with the disease, had no choice, but was born brave."

Is growing too beautiful is also a disease?

Her ordinary parents have also become extraordinary choicers on her way to growing up, they think very simply, and escaping will leave many regrets.

Choose to move forward with courage and face the predicament, the gift of bravery may come in any form, and they just have to persevere and wait.

I hope that this gift will not be too long, and I hope that all the babies under the sky can be lively, healthy and grow up happily

Is growing too beautiful is also a disease?